Oral Presentation Victorian Integrated Cancer Service Conference 2015

“Women’s experience of a Survivorship Pilot Program” (#72)

Lee Kennedy 1 , Robin Curwen-Walker 1 , Fiona Mcrae 1 , Bruce Mann 2 , Meron Pitcher 3 , Shanahan Kerry 2 , Leanne Storer 3 , Sita Vij 4 , Ines Rio 4 , Bianca Bell 5
  1. BreaCan, Melbourne, Vic, Australia
  2. The Breast Service , The Royal melbourne and Royal Women's Hospitals , Parkville, Vic, Australia
  3. Breast Service , Western Health , Footscray, Vic , Australia
  4. GP Liaison Unit, Royal Melbourne Hospital, Melbourne , Vic , Australia
  5. GP Integration, Western Health, Footscray, Vic, Aus

Introduction

184 women participated in a Victorian Government funded Breast Cancer Survivorship Pilot Program for women completing definitive treatment for early breast cancer in Victoria in 2012/13.  Qualitative evaluation reveals a high level of consumer acceptance of the initiative and some important feedback on opportunities for improvement.

Objectives/Aims

This presentation aims to outline the results of project evaluation in relation to the women’s experience of various aspects of the survivorship pilot and highlight areas for potential improvement.

Description/Methodology

Acceptability, effectiveness and impact of the pilot program process were evaluated with a follow up survey with 107 participants with 70 (65%) returned. Twenty telephone interviews with participants were undertaken to capture qualitative information about the process, outcomes and impact and to identify areas for improvement. Women were asked about their experience of attending the Nurse Led Clinic (NLC), including practical and lifestyle considerations, views on the care plan, and possible improvements to the process. 

Results

Several features emerged from the interviews including how women understood the term ‘lifestyle’ and how this related to their whole lives, not just while experiencing cancer.

Some examples of other responses include :-

100% respondents rated the NLC as a positive experience

70% felt safe and confident about their GP being a partner in their on-going care

80% had been back to their GP to discuss their care plan

75% had made some positive change as a result of their diagnosis

55% did feel encouraged to change aspects of lifestyle

Conclusions

While the evaluation has shown a high level of acceptance of this approach, women’s responses have highlighted that opportunities exist to improve various aspects, including changes to lifestyles and use of shared care among other elements.